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Jettdaniel08 05/20/2012 12:25:00 AM
Wow. Do you have cancer??
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Justaride 11/02/2011 1:01:00 AM
Thank you Martin and Henry. It's hard enough coming out the other end of this fight with any sanity or sense of self. Worse to come out of it many times over only have some middle-aged random alcoholic sitting in their parents' basement firing off a comment that both misses the point and spirit of an article you hoped would let other patients laugh and not feel so alone. So again, thank you. Glenn
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10/26/2011 6:39:00 AM
WOW Linda seriously??? Take time out of their busy life while someone with no choice who has cancer HAS to take time out to survive??? You seriously have not had cancer. I have had cancer and you need to exercise better manners. I would like the basket of lemons too even tho i probably won't taste them because i went through full body radiation, had chemicals destroy my taste buds but I would never wish or hope you get cancer. Unfortunately maybe then you would understand this article more. Does anger vibrate off this post?? umm yeah I freaking had cancer!!
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Mmillr 10/21/2011 2:19:00 PM
You've never had a serious illness or cancer have you? BTW do you drink latte's?
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Mmillr 10/21/2011 2:16:00 PM
Thank you! I was lucky when I was diagnosed with stage 4 prostate cancer (and yes I am Jewish) that virtually all of my friends stayed friends and fairly "normal" about it. Not that it was all easy going all the time. One friend in response to my "I must have picked my friends well" said "Martin, did it ever occur to you that maybe we PICKED YOU!". My psychiatrist did have problems with it. Well 1 out of a hundred wasnt too bad! :) Sure I'd go back and change things but only if I could remain who I am now.
martin
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07/01/2011 3:35:00 AM
Thank you. I am having a Pancreatic Cancer moment and my wife found your article. What can I say, you nailed every point. I had a relative call me and tell me to start eating more vegetables the other day, thanks for the advice. Since I had just come from the genetic counselor and they explained how my DNA basically had a floating point decimal error and made some bad cells I am not quite sure how the veges would have fixed that! Plus all the "pancreatics" as my oncologist refers to us (which I really think is kind of funny and I am NOT offended by that) tend to have a hard time with the veges after they replumb our intestines. I think I will go check out your book! Keep your chin up and keep spreading the love.
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Linda 06/30/2011 12:38:00 PM
Boy does the anger ever vibrate off this article. Since when did Cancer give patients the right to exercise poor manners. This person has something much worse than cancer. This person has no respect for any of the caretakers or supportive friends that may try to help. So what the person at the foot of the bed had a beverage. The patient overlooked the point, that person was taking time out of their busy life to be at the foot of that bed. Please do everyone a favor and learn the words thank you, I appreciate your efforts. I would not have sent you a basket of limes, it would have been a basket of lemons to match your attitude, sour.
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starla 10/11/2010 11:09:00 AM
my most fave remark
was from a lady who worked in the cancer office and had a crush, so it seemed on the DOC.
Before I entered, into the examination room,she stood in front of me, stopping my going in,and cooned...................ooooooo you are so lucky he is going to examine you.........I WISH IT WERE ME.
Oh my gosh.........here I was......a stage 1v cancer patient......fighting for my life....
and She considered me lucky.................whew..............I had alot of very kind and amazing remarks......but that one.........that one, makes me laugh.
starla
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lisa 08/27/2010 9:48:00 PM
I just want to say thank you. My mom was diagnosed with cancer three months ago. Its already been so hard to keep her positive through everything. I try to do everything I can think of the help her but I always feel like its not enough. Not being able to really help is truly the hardest part. I think the comment that bothers me the most from people when I tell them is "I'm sorry" Sounds stupid, right? I mean, what else can they say? But for some reason that one gets me... I feel like "why are you sorry? I haven't lost her yet" (and don't plan on it) How can I keep her positive when everyone else is bringing me down..
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Katherine 08/07/2010 1:57:00 AM
I was looking for advice how simply NOT to think about cancer. Your comments are well made and true, but but, there is nothing like NORMAL treatment of cancer patients, especially those who are chronic.
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jennifer 07/02/2010 8:48:00 AM
I loved this!Just today I was told if I ate better and willed myself to live it would happen.When I was 1st starting to feel bad and going to the doctor prior to my diagnosis I overheard my boss say to a co-worker "What a hypercondriac"I had gone to the doctor 3 times over 4 months.First time I had gone to the doctor in the 5 years working with the company.Then throughout my chemo and radiation she would tell me "You look so good I forget you are sick"Really??The wig and no eyebrows and eyelashes look good??
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Alaina 06/18/2010 7:20:00 PM
This was a great article!!! I was diagnosed with stage IV, inflammatory breast cancer 5 and a half years ago. I have heard just about all of these and would like to add a few more... The person who said to me, "I wouldnt do chemo, it will just kill you faster!" and "well look on the bright side, soon you will know if there is a God or not" and "what stage are you?", I told them I was stage IV and then they asked, "what comes after stage IV" and I told them, "apparently for me, heaven" and I must add, I really loved this one, "ohhh, you never got a mamo? and you ate red meat, sugar and were a bit over weight, I have had my mamo, and I never eat red meat, nor sugar and I always watch my weight" ARGH!!! Listen, life is terminal, no one escapes this life alive so get over it already!
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Jenny 06/18/2010 11:57:00 AM
As with the rest of the comments this really resonated with me as I have just achieved remission for the second time first diagnosed with Inflammatory Breast cancer Stage IIIC August 2008 -was only in remission 5 months April 2009-October 2009 the first time. I especially liked the morbid humor point and several others but like most other posters have said only those who have been there really get the point
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jenifer roan 06/18/2010 9:34:00 AM
Under What Not To Say, add:
1. Wow, you'll get to lose some weight.
2. You don't know how lucky you are! You get to retire & I hate it here. Wish I had something.
Yes, these were said to me on different occasions by the same clueless woman.
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Sharon 05/26/2010 11:41:00 PM
I am astounded by the people who seem shocked by the fact that I am smiling and functioning. Or that I am at work a few days after having a port put in. What am I supposed to do-- crawl into my bed and only come out for CT scans and chemo appointments? Would people feel better if I was constantly bursting into tears? Should I take sick days when I can pop a Tylenol and do my job without trouble?
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Lys Fulda 05/12/2010 7:56:00 PM
Love it! So true and funny as hell. Fourth year cancer free from Thyroid Cancer.
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bob22312 05/10/2010 7:30:00 PM
Everyone who does not have PCa knows an uncle or cousin thats is doing just great. Very rarely do they understand or know the clinical details of his case and are unable to discribe why he is doing just great. He will probably never share the moments of incontinence, discomforts, fear or sweats with his relatives and if he is moving and looking the same he is doing just great. At each instance I always want for information and all most always its not available.
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Don Jordan 05/06/2010 7:29:00 AM
I am an oncology nurse with Rocky Mountain Cancer Center in Boulder Colorado. I really liked the article. I think the part about being straight forward is exactly on target. Most of us (including Oncology nurses) try to put a positive spin on the efficacy of treatment, how good someone looks, etc, and do an outstanding job of dancing around the elephant in the room. We need to address the elephant.
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Jenn 05/05/2010 10:35:00 AM
I am the mother of a young cancer survivor. This article should be handed out in stack form to pass out to all the well wishers(nim rod type) people that come out of the woodwork at the first diagnosis. It has so much truth & guidelines for people who do not know what to do but want to. It also made me chuckle which is always a plus !
Thanks for sharing!!!
I'll pass it along.
Jenn
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Patricia Rain 05/01/2010 3:19:00 AM
Beautiful! You are so right-on! I'm a three-time breast cancer survivor (so far). My first diagnosis was Stage IV. Miraculously, I qualified for liver resection surgery two years ago, had 40% of my liver removed, and so far, am okay.
My favorite terrible comment -- and this from a close friend, no less -- "If you'd just let your inner child come out, you'll be okay." Especially curious as she always commented about my playfulness and strong inner child.
My daughter was seven months pregnant with her first child when I was diagnosed. Friends assured her with comments like, "Oh, my mom had breast cancer and she had a mastectomy (or lumpectomy) and she's just fine. Your mom will be too so just stop worrying."
The reality of a serious diagnosis (or even a not-so-serious diagnosis) is too large a concept for most people to grasp...unless they've been there as we have. It's tough being the "educator" and the "comforter" for someone else when you're the one dealing with your own mortality.
Thank god for humor -- even gallows humor between survivors -- as it helps us get through the day! Thanks for a good blog/article.
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besy 04/28/2010 10:09:00 PM
I thought this was really good!!!
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pariah 04/26/2010 2:07:00 AM
Get over it. We are all going to die of something and having cancer doesn't make you any more special or more deserving of sympathy or consideration.
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Laura Shook 04/17/2010 10:13:00 PM
Thanks for saying all the things I've been thinking, and for making me laugh in the process!
Good luck to you!
Laura Shook
www.laurashook.com
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Lori Hope 04/17/2010 8:09:00 PM
Glenn, this is fabulous! When I wrote "Help Me Live: 20 things people with cancer want you to know" (see www.lorihope.com), I endeavored to be as caring and sensitive as possible so as not to shame or injure the injurers, who doubtless mean well. But I love that you pull no punches - and that you make us laugh, which defuses the anger and grief - what a perfect complement to the literature out there!
Thank you so much for this and I look forward to reading your book.
All best,
Lori
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linda 04/17/2010 9:16:00 AM
My daughter has relapsed Hodgkin's. People keep asking what is the prognosis NOW - What do you think?? The same as it was yesterday, the day before, and at diagnosis. Next question - when will you know if she is cured?? Like 5 years maybe if she doesn't relapse again first. Next - what if it comes back for a 3rd round? I tell them then she's a goner. I don't mean to shock people, but I have had enough shocks myself to last a lifetime in the last 2 years so I have little time to cushion the "truth" from my friends and acquaintances. Why can't we be be honest and open about this horrible disease?? BTW, Hodgkin's lymphoma is NOT the "good" cancer. If it comes back, it is very very BAD especially since it is rare and hard to cure at that point - like stubborn weeds. I would however prefer these kinds of questions and comments over sheer avoidance - it's not like leprosy. People are SO afraid of the subject of serious illness. That fear feels like apathy or callousness to the patient and the family, so talk about it and don't be afraid to ask questions even if they turn out to be dumb ones. You will get better with practice and time, so reach out, listen more than you talk, and don't eat in front of a cancer patient - ask them first or they may involuntarily puke all over you.
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Cynthia 04/17/2010 4:32:00 AM
Thanks for writing advice on how not to cheer up a cancer patient. I found it funny and helpful! When I was diagnosed with Lymphoma then relapsed after treatment, my sister's boss told her that his dad beat prostate cancer, so why can't I beat Lymphoma the first-time around? As annoying as that was, I laughed so much at the ignorance.
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Anne Marie 04/16/2010 11:28:00 PM
This cracked me up and I needed to be cracked up! I am two months out of 6 months of chemo for stage III ovarian/peritoneal cancer. I agree with so much of what you said and I am going to print this article and send it to my brother who was diagnosed with stage IV colon cancer. He will appreciate the truthfulness of this article as much as I did! I cannot even tell you how many stories I heard about aunt/mother/sister/girfriend/daughter who had ovarian cancer and died. The best one was the owner of a sporting goods store who gave my husband an expensive Chicago Bears football scarf, in honor of his mother, now deceased, after my husband mentioned I was a Packer fan...Rock on!
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Judith 04/16/2010 9:37:00 PM
An article that deserves to be circulated worldwide.
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Jill 04/16/2010 8:54:00 PM
Thanks for the laugh! I am currently undergoing treatment for metastatic breast cancer. I look awful and I know that, so I'm constantly bewildered by all the people who say "Well, you look good." No I don't, and stop being such an idiot. I blogged on this subject a couple of months ago... I have a few more (hope it's okay to put in a link, if not just ignore it): http://jillsblahblahblog.wordpress.com/2009/12/17/things-to-say-and-not-to-say-to-a-cancer-patient/
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nancyc 04/16/2010 7:42:00 PM
I'm a two time "winner"...stage 4 breast and st 4 neuroendocrine cancer. Imagine the opportunities for laff riotousness! My least favorite exchange was with my (adult) niece, who called when she learned of my st 4 breast cancer diagnosis. She proceeded to tell me all about her other aunt's second husbands excruciating death from colon cancer. As I'm an RN, and have some perspective, I was able to avoid ripping her a new one over the phone. I told my brother that his daughter needed some work on her people skills!
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Lisa 04/16/2010 7:05:00 PM
My 10yr old daughter is going through chemotherapy for Hodgkin's Lymphoma right now. The comment I get the most is, "I've heard hodgkin's is pretty curable!". The truth of the matter is, yes it has a 90% survival rate. Who in the world would want to line their child up with 9 other kids and play enie menie minie moe? Come on people! Curable or not, no child should ever have to battle something that most adults can't handle.
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birdies 04/16/2010 12:28:00 PM
People ARE insensitive! At first I heard about every experience anyone had with cancer, INCLUDING their dogs, cats and hamsters. I would wait patiently through the sad, sad stories that I knew were coming. Finally, when someone would launch into a story, I'd throw up my hand and say, "Does this story have a happy ending? Because I only listen to stories with happy endings." It stopped a LOT of the "I know you pain through my experience trying to save Skippy 30 years ago." I have breast cancer, not your aunt's liver cancer, not your dog's bladder cancer, and not your boyfriend's ex-wife's first lover's prostate cancer! Keep your sad stories to yourself or talk to a therapist, don't cleanse your soul while I'm attempting to make bandanas a new fashion statement. You go!
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Emily T 04/16/2010 6:16:00 AM
The one bad comment I remember after my cancer diagnosis was
"A good doctor would have caught it earlier". I still bristle thinking about it.
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GGC 04/16/2010 4:41:00 AM
"I don't understand the significance of the limes either." - to me this is YOU obviously seeking the 'limelight' - it's amazing the lengths some people will go to for a little attention!!
Personally, I recently heard of a sly comment regarding my continuing survival beyond my two year prognosis (with metastatic breast cancer) - "Is she STILL alive?" - said as if I was taking up someone else's place!!
I get your (former?)employer's humour - it could have been a basket of lemons....so you could make lemonade -(for when 'life' hands you lemons...)
Keep smiling and don't die, that'll confuse 'em no end :) GGC
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WhiteStone 04/16/2010 3:49:00 AM
Carcinista pointed me in this direction.
Currently, as an ovarian patient, I take humor wherever I can get it. AND give it. I wish I had videoed the morning I stepped into the bathroom, bald as a billard ball, while Hubby was brushing his teeth in front of the mirror. I leaned over his shoulder and gave him my best "Gollum" imitation...complete with snarl. I made him clean the toothpaste off the mirror. I'm still laughing! LOL
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Rebecca 04/15/2010 9:36:00 PM
thank you!! Great article! And a million apologies to anyone else that may have gotten the equivalent of a basket of limes from me!
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The Carcinista 04/15/2010 7:40:00 PM
Omigod this is hysterical. My husband's company's CFO visited me in the hospital after my hysterectomy - first time I'd met her - while I was farting like a truck driver, trying to get my resected bowels going again so I could go home, no shower/makeup in a week, etc. etc.
I think we might be related. Thanks for the laugh!
Sarah
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Janet 04/15/2010 6:38:00 PM
Ah...yes! The things people say! One that annoys me most is when people look at me sadly and say, "I'm so sorry." Makes me feel as though I'm observing at my own funeral. Don't think and act as though I'm dead and buried yet. There's still a lot of fight and an arsenal of options. I really do know that people are trying their best to say the right thing but, gee, pump me up a little. I can get down and maudlin without the help of anyone else.
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Sandi Pniauskas 04/15/2010 7:20:00 AM
As, yes, an ovarian cancer survivor although it gets more complicated than that - thank you. I laughed like crazy through many parts of the article discounting the religious/racial inferences, of course. The humor was great.